"Where in the World is Dr. Stephen Shore?"-Shanghai, Toronto, Somerset and MIT
Where in the World is Dr. Stephen Shore?...well Dr. Stephen Shore is apt to be anywhere in the world, but almost always performing the same service:
Kathleen: Hello Stephen. Thank you for joining me again. I understand that we will be looking at your visits to Shanghai, Toronto (the Geneva Center for Autism), a parent group in Somerset, Massachusetts and MIT (Massachusetts Institute of Technology). Given that one of your two talks at MIT is for a course on technology for people with autism, I have invited Michael Leventhal, educator, autism researcher and administrator of the site Tech4Autism to lead the questions in that portion of our conversation.
Stephen: Indeed it looks like a busy week and a half coming up crossing over 12 timezones to do a series of 5 presentations.
Kathleen: On your last trip to Shanghai you reported on the Hong Kew district of Shanghai. What will the focus of this trip to Shanghai be and where will you have the opportunity to visit?
Stephen: The focus of this trip to Shanghai will be to keynote for the Special Education Network In Asia (Senia). At the conference will be a number of people from international special education schools located in Southeast Asia. When I last looked at the conference website I saw people presenting from schools in Beijing, Singapore, and of course, Shanghai. I look forward to learning more about the state of private special education in the Far East.
Another part of my trip will be spent at my parents in law's home in Shanghai as well. I am not sure what our itinerary will be over those few days but I'll be glad to report on what happens.
Kathleen: Your personal travels are always of interest to those who follow your work as well as your professional endeavors.
Stephen: I find them fascinating too. Otherwise I suppose it would be a really ghastly thing to do.
Kathleen: What do you know currently of the practices in Shanghai for special education specifically as pertains to autism spectrum?
Stephen: Not much... but what I do know is that there is a long way to go in terms of awareness and support for people with special needs. As far as I know there remains no special education law like we passed in the United States in the mid 1970s. In some ways that may provide people in countries where a law has yet to be passed to learn from our experiences.
Kathleen: This sounds like an excellent place for a collaboration of autism experts to assist in setting up a framework for autism education and best practices.
Stephen: And yes, this conference will be an excellent place to initiate collaborative efforts to make lives better for people with autism and other special needs.
The subject of the presentation in Shanghai will focus on personal experiences with being on the autism spectrum and their implications for education. For example, I would spend hours in elementary school reading all the books I could get my hands on that related to my special interests. Some of those interests included astronomy, geology, electricity, and other sciences.
One day, when I had a stack of astronomy books on my desk a teacher told me that I'd never learn how to do math. Somehow, I managed to learn enough mathematics to teach statistics at the college level.
The good news is that these days an educator would have noticed that interest and found a way to work it into the curriculum. The implication is that a passion – rather than being considered as a distraction – can be employed as a powerful motivator to learn academic material.
Kathleen: What a funny, yet sad story Stephen. It is very humorous and inspiring given how accomplished you are in so many areas. At the same time it is deeply saddening in that it indicates to me that so many individuals on the spectrum were given far less support and nurturing than they needed and deserved. You however are doing wonders in raising awareness for the potential of EVERYONE on the spectrum.
In Toronto I see that on Wednesday March 2, 2011 you will be the featured speaker at the Geneva Center for Autism. Why don't you share the topic of your presentation and some of the highlights from it as well?
Stephen: In Toronto the subject will be similar. However, in contrast to a short 75- minute presentation in Shanghai, the Canadian event is a full-day workshop. This additional time will allow me to go more deeply into subjects such as developing accommodations, learning the "Hidden Curriculum" as described by Brenda Smith Myles and colleagues; and doing so in a more interactive way with case studies and other audience participatory activities.
I also will talk a bit about including children with autism in the music curriculum and teaching them how to play an instrument. However, that can be an entire presentation in itself and perhaps a topic for a future interview.
Kathleen: I'm looking forward to the book you will offer "one of these days" specifically regarding Music and the Spectrum Student!
Your presentation at the parent group in Somerset, Massachusetts will be hosted by the Somerset PACE (Parents Advisory Council on Education) ....a sneak peek of what will be covered can be found here:
Kathleen: I couldn't agree more.
As we delve into the specifics of your two talks at MIT (Massachusetts Institute of Technology) I would like to ask Michael if he has any questions regarding technology for autism which is one of his areas of research concentration. Michael?
Michael: A lot of terrific technology has come out of the MIT Media Center during the past two years. Lately I am seeing more of Matthew Goodwin and about Dr. Picard's work on facial recognition. What value does this research hold for Spectrum education? Fill us in on what you are presenting.
Stephen: Yes, Dr. Ros Picard is doing a lot of important work on using technology to help people on the autism spectrum. Her work on facial recognition is very promising as that remains an area of great difficulty for many people on the autism spectrum. Some people with autism are able to recognize some expressions but may find it impossible to remember faces.
Dr. Picard wants me to talk about my experiences on the autism spectrum. My sense is that there will be a lot of interesting discussion in that class between the students as I and they continue to seek a better understanding of autism.
The second presentation focuses on increasing administrator awareness and understanding of autism. For that presentation I will probably focus more on how an institute of higher education and provide better support for people on the autism spectrum.
Michael: Do you have any inside info on anything else new coming from MIT or Georgia Tech?
Stephen: I wish I did... and I'll probably have more after my visit to MIT on March 3rd.
Michael: I see a new graduate level MIT course that engages the students in the tech development process. Sounds promising. Any thoughts?
Stephen: Engaging students is a great idea since it is they who will be the future researchers, interventionists, and educators of people with autism and other special needs.
One thing that comes to mind is to make the material as ecologically sound as possible. That's just fancy edu-speak for saying that we should do all we can to provide environments as close to what the person with autism will experience in their daily lives.
Michael: What tech do you believe is the most valuable to people on the Spectrum right now? in the future?
Stephen: That's hard to say. The answer probably depends on the needs of the particular person(s) on the autism spectrum. The individual who has not developed a reliable means of communication yet may need something different than the person who has a 145 verbal IQ yet remains unable to decode nonverbal communication.
Michael: I am most interested in see the wider use of video modeling in education. I am pleased to see so many excellent products available for use. Personally, I believe VM will prove invaluable in facilitating language development for some and will provide a communication platform for those who have language but are denied the opportunity to be heard. Comments?
Stephen: There's much to be said for that. A large part of - possibly even a majority - of challenges people with autism face stem from difficulties in effecting reliable communication with others.
Michael: I post video clips that demonstrate the extreme ends of the communication spectrum.
*(Here are some examples of videos Michael has posted)
Non-verbal child says "more"
Chris was ambivalent about communicating orally. In fact, he rarely made a sound. Seeing himself on camera motivated him to vocalize.
J.R. has always been able to answer simple questions with 1-2 word answers, and then only after lengthy pauses peppered with hems and haws, teeth gnashing and guttural sounds. Very few people bother to engage him in conversation because they do not expect he is capable. I only realized we were having a conversation because I was testing for it. I waited patiently for each of his response before I continued to talk to him. Once I realized he was indeed following the conversation, I decided to document it by editing out anything that was definitely not communication oriented.
I Need A Break
Student is given language to communicate emotional state.
Stephen: Video clips like that will be very helpful to those wishing to learn more about communication challenges of people with autism.
Michael: I am wondering how it is possible to stimulate such research. I would also like to see a more public platform for the myriad of videos posted by people on the Spectrum as a means of self-expression. If I go to a doctor with a cold, he/she will ask ME what my symptoms are. Why cant we do the same with spectrum citizens? Sorry, moved off-topic. Perhaps a college course reviewing and evaluating work already posted might yield unexpected benefits?
Stephen: Makes sense to me. We all need to get better at listening to people with autism and understanding that they may not use the verbal form of communication to say what needs to be said.
Michael: So you really are Don Quixote after all!
Stephen: I see some windmills in the distance so I'm going to tilt at them.
Michael: Bravo! Actually, each time you present or lecture, you are opening the secret world of autism to the public eye.
Stephen: That's one of my goals. To serve as a translator between the worlds of autism and the rest of society.
Michael: Which is why the work of People like Kathleen and her peers is so valuable in providing wider exposure. The Internet is invaluable in that respect, connecting more people to the information that would otherwise remain in smaller venues like a single classroom or a single presentation.
Stephen: The Internet is great at transcending space and time.
Kathleen: Video modeling will certainly prove to be a powerful tool in helping to disseminate this type of information.
Stephen: I agree in that video modeling can be a very powerful tool in this area. Looks like we have our work cut out for us!
Kathleen: Indeed! We have covered a lot of territory this evening. Your schedule is very tight Stephen ...your days begin early and and go into the late evening. Thank you for sharing your time and some of your travels in autism with us!
Stephen: It's been a pleasure. I'm off to Shanghai on Wednesday, March 23rd and I look forward to reporting my findings.
Kathleen: Thank you Michael for your time as well and adding to the discussion on how technology can improve life for individuals on the autism spectrum.
I'll be updating as Stephen makes the rounds at various autism spectrum conferences, presentations and related functions. To catch our conversations, watch for the next: "Where in the world is Dr. Stephen Shore!"
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